Monday, December 2, 2019

Joyful Suffering : ( :

I've been trying to figure out what I want to talk about this year for IBD Awareness week and the 2nd anniversary of being officially in remission from Ulcerative Colitis.

In conjunction with other life events, I think the most fitting topic is joyful suffering.

Speakers give talks about it at conferences and retreats, but they never made sense to me. Truly the only thought that would come to mind is the Harry Potter scene in the Prisoner of Azkaban where Ron says, " You're going to suffer, but you'll be happy about it." I always left those talks more confused with the idea that joyful suffering meant that whenever something bad happens, you are supposed to have this big smile on your face.

I do not think that anymore.

I am part of a small women's faith group over this past year, and I have had the opportunity to make friends with another lady who also has a chronic illness. It has been lovely to bond over digestive issues, food restrictions, and current medications. We were talking at one of our women's group nights about our illnesses, and she mentioned that she is grateful that she has her illness because she knows she can handle it. I wholeheartedly agreed with her. I even refer to my journey as a cleansing fire because it sorted out the people and decisions in my life, and helped me recenter on what is important in life.

Then skip ahead a couple weeks to another women's group I was hosting that I felt like was going off the rails(but really it was going exactly where the Holy Spirit was leading) and I found myself at the end of the night going through the Catechism of the Catholic Church. I was in a super deep dive after everyone left, and I found myself looking up the Anointing of the Sick sacrament. While I was in the hospital when I was first diagnosed June 2017, my priest visited me and gave me the Anointing of the Sick(which is supposed to be one of the last things that a priest does before someone dies, but it can be given in other instances).

I don't need to get in the nitty gritty of the sacrament if you want to brush up on it here is an online version: http://www.vatican.va/archive/ENG0015/_INDEX.HTM

But here is what it says about the Effects fo the Celebration of This Sacrament[Anointing of the Sick]
1520
A particular give of the Holy Spirit. The first grace of this sacrament is one of strengthening, peace, and courage to overcome the difficulties that go with the condition of serious illness or the frailty of old age...
1521
Union with the passion of Christ... Suffering, a consequence of original sin, acquire a new meaning; it becomes a participation in the saving work of Jesus.
1522
An ecclesial grace... By celebrating this sacrament the Church, in communion of saints, intercedes for the benefit of the sick person, and she for her part, through the grace of this sacrament, contributes to the sanctification of the Church and to the good of all men for whom the Church suffers and offers herself through Christ to God the Father.

Now what does that mean?

No idea. lol it does make me feel like I have some BA superpowers though.

I found it consoling as to the experience I've had with my illness and I do think that I got another dose of the Holy Spirit that has helped me come to terms with my illness and understand Jesus's passion on the cross.

I got to thinking about joyful suffering in relation to Jesus's passion and how I could apply it to my own life.

I don't think this is something you can really advise someone when they are going through a hard time. I think that you honestly have to work up to it spiritually or else it doesn't make sense.

I didn't know that I even could do joyful suffering until recently, and I don't even know if I'm doing it 'right'.

My family is going through a hard time where there is a lot of pain and confusion.

When I found out what was going on, all I could think to God is why? Which is the same question I had when I got my diagnosis. Why me? Why now? Why this?

This time, I could actually talk to God about it. I ended up going up into the foothills and watched the sun set over the horizon and just pray. All I could think about is St. Faustina. Lord, I trust in You. Lord, I trust in You. Over and Over again until I could somewhat believe what I was saying.

I drove home and got to thinking about the theology on tap the next night and was deciding whether or not to go to it. The topic of the evening was "Gratitude Cafe" a night of gratitude for the Thanksgiving spirit. I didn't know if I would go. I did not feel grateful for the situation I found myself a part in. I brought myself to read the small except I had prepared for the Gratitude Cafe and it helped me pray.

Here is the little blurb I had prepared from a previous talk I gave back in sophomore year of college:

Gratitude is easy when everything goes well. Like when Jesus was able to feed all
of the 5000 people on the mountain even though he only had 5 loaves of bread and
two fish. It can be hard to be grateful when things don’t go as planned. But we are
called to give thanks in all circumstances. There is an autobiography called the
Hiding Place. Two sisters are sent to a concentration camp. The bunks where these
two girls were staying was infested with lice. One of the sisters was upset about
having lice, but the other sister said that they should be grateful for everything-
even the lice. They found out later that the guards were raping all of the other girls, but not the two sisters because they had lice.

God has a plan beyond what we can understand. When everything seems like it is
falling apart that’s when God is putting things together just the way he wants it. As Mother Teresa said, “ God has not called me to be successful, he called me to be
faithful.” We have to accept that God’s will, will be done. We should accept that
because of our trust for him. It really boils down that God loves us and he wants the best for us. Even though we can’t see the big picture we should be grateful.

Later that evening I was able to talk to one of my sister's about the situation. It was humbling to be able to pray together, and give it all over to God, and trust that he is going to work through this situation.

So that joyful suffering thing. I couldn't find it in the catechism, so I'll give it my best go-

Joyful suffering means to fully acknowledge your feelings(the sadness, anger, worry), but to also have the awareness and trust that God is going to use whatever situation for his glory and for goodness. Joyful suffering is being within the fire and knowing that the pain with ease even though it will take time. Joyful suffering is hope that you will come out better on the other end.

This falls in line with the current bible study I am participating in. Father Dom is going through the Book of Revelation- which talks about the Apocalypse. We receently discussed chapters 5 & 6, which go into detail about our predestination of Glory and our disorders that were not suppressed in baptism.

We got to talking about Christ's wounds and whether or not he has them now he is in Heaven. Father Dom said that he does(and it's in the Bible when Jesus visits the disciples in the Upper Room and Thomas touches his wounds). He has his wounds because they helped him have his victory to be able to fully glorify God.

Therefore, our own wounds( our disfiguredness/disorders/insecurities) help us share in his victory if we let them. Every time we use a trial we are facing to Hope more in Christ- it is a victory of Christ and we recover a capacity of love. We choose in Hope (in Christ) to keep loving means that we choose to be fully alive(and choose to love) because of Christ.

Then this helps us with our predestination of Glory. Our mission on Earth is the same as Christ's mission- to glorify the God. We are able to glorify God when we bear fruits(John 15). When we choose to love and hope then we are able to glorify God. Christ is offering his glory when you bear your cross, and bear it in hope and trust in God.

Thank you and Happy IBD Awareness Week! 2.5 years down- a lifetime to go!

Tuesday, January 29, 2019

Head to the Heart #1

What do you do when the silence comes?

Do you try to break it with laughter?
or do you think it is something that needs to be fixed?

Why don't we see silence as much a gift as noise?

each have their place.
neither greater than the other.

Do your ears tune themselves to the creaky building?
or the clinking of silverware on plates?

Do you find that you must talk to yourself out loud to compensate?
do you write all of your random thoughts in a journal so you don't drown in the ear splitting soundless ness.

Why don't you breathe.
                 take a second
                         and
                         
                               breathe.

The world is full of sounds
                            of thoughts
                            of distractions

                 take a second
                         and
                         
                               breathe.

And when you breathe

                                    pray.

Now not the normal prayer
                     Dear God
                           or
                     Hail Mary

Pray in the silence
                  empty your mind
give yourself the freedom to not think

Once you are free from thought
          ask God to come in.

He'll take it from there.

Head to the Heart #5

Have you ever felt so in tune
with God
that all of the cells in your body

Sway in praise?

and your body is left
tingling
even after the moment has passed?

Head to the Heart #4

Adoration.


through the incense
and the tears
throughout the prayers

sometimes

there is a glimmer

for half a second

that the host
is truly something more divine.

Head to the Heart #3

Where was God for you?

           for me it was
                a reflection
                   a conversation
                      a sound

Head to the Heart #2

Everyone starts off
                               generally happy
                               a little on edge
                               curious of the unknown


Somewhere along the weekend
                    a switch is hit
                    walls fall down
                    minds open to what's been there all along


At the end
            I like to think
            we all stand a bit straighter
            our eyes shine a little brighter


When we focus on You
           we remember the real purpose
           we remember our belovedness
           we remember You

Head to the Heart #1

How do you pray?
         are you silently sitting in a church?
         do you curl yourself up in front of the cross?
         did you take a chair and sit at the edge of a pond?

Do you cry?
             laugh?
             sing?
             are you silent?

Does it set your heart on fire?
Does it give you peace?
Or do you yearn to feel anything at all?

Sometimes it feels like a wall.
                                         dry.
                                         boring.
                                         useless.

I'd be lying if I said I've never had that prayer.

But God is still working.
in the silence.
when our feelings can't be put into words.

Thursday, January 10, 2019

Living with a Chronic Invisible Illness

I'll be enjoying a good conversation with a friend or family member, and then at some point the conversation will turn; they will get a serious face, and ask how I'm doing with my ulcerative colitis.
I will usually say it's doing well or mention some other food item I have to avoid.

Honestly for the most part it is okay. I'm glad that it is an invisible illness because then I don't have to see the pity stares and people don't see it as a disability that impairs my ability to do stuff. It is my burden to bare.

The problem is that I forget that I do have limitations. Try as hard as I can, my ulcerative colitis reminds me that it is still there.

It's there in my medications and vitamins I take every morning.

It's there in my infusions every two months.

It's in my bi-annual doctor appointments.

It's there in my colonoscopies every five years to check the status of my ulcerative colitis and to see if I have gotten any cancer from my medications.

It was in every day for the first year when I couldn't get the sound of the beeping hospital monitors out of my head.

It's in having to ask if I can still be an organ donor with all of the medications and infusions.

It's in getting tired after taking a long shower and having to sit naked on the floor of the bathroom.

It's in worrying about my ability to have children one day and worry that if I do have kids that they could get it too.

It's in having to stay home from work because my urgency came back and I can hardly leave the bathroom for an entire day.

It's in having a trump card when anyone brings up a diarrhea story. 

It's in having to worry about insurance and paperwork.

It's in not talking to my coworkers about my condition. They probably think that I just have weird menstrual cycles.

It's in seeing my mom start to cry at any mention of my stay at the hospital.

It's in every trip home and night out with my friends because I know how important they are.

It's in every prayer with God asking him to help me cope and see all the good in the world.

Living with a chronic invisible illness means that I keep a lot in my head. But I wouldn't have it any other way. I don't have any desire to have people treat me differently. I am just as tough as the next girl. The only limitations I have are the ones I place on myself. There is a lot that can go wrong in one's life. Luckily for me, my guts just hate me. Or really-some of my guts hate me.