One Year Anniversary!

Happy one year anniversary to my dearest colon!!
🎊🎉🎉

I figured I would celebrate because you know that old saying about loving your enemies!....You know...Since my colon basically attacks itself...yeah...I laughed.....



It has been a year since I was diagnosed with Ulcerative Colitis.

It's weird how something that was once so shocking is now just a part of me like my nose.

I remember sitting in the hospital bed when the doctor came in and gave me my diagnosis. It was the second time I had been in the hospital that week. Earlier I was in for a CT scan because I had intense abdominal pain in addition to a lot of other gross symptoms. They sent me home and told me to schedule a colonoscopy ASAP. I did and the symptoms didn't get any better, so my mom took me back to the hospital where I was officially admitted.

The doctor came in, said something about test results, and that I was diagnosed with Ulcerative Colitis. Then my ears turned off.

Wait.

There's something wrong with me?

"It's a chronic illness....treatments..."

Wait. 

Ulcerative Colitis?

My mom mentioned that she has a friend of a friend who has Crohn's. "Thank God it's not Crohn's!"

Wait. 

How?

"There's no known cause..."

Wait. 

I remember saying Ulcerative Colitis over and over again in my mind for days.

You know when you say a word over and over again and it loses all meaning and it just starts to sound like a weird made up noise?

This was the opposite.

These two words that I had never heard of before were now attached to me. Forever.

Ulcerative Colitis.

I couldn't bear to look into the details on the pamphlets they gave me while I was in the hospital, so I opted to finding memes. I needed something to stop my urge to cry out.

Some of my favorites where:

-They say always to "trust your gut". Have you met my gut? You don't want to trust that bastard.
-Yes? Hello. I'd like a refund on my body. It's kind of defective and really expensive.
-I'm too busy fighting my own immune system to deal with your judgmental BS.

While I was in the hospital, I felt like my Ulcerative Colitis defined me. Which is fair. I was an IBD (inflammatory bowel disease) flare patient on a post surgery recovery floor. It defined my treatment. It defined my diet. It was defining how people treated me.

Talk about a hostile takeover.

Women in my IBD support groups say that a flare is much more painful than childbirth to put it into perspective. I was in my flare starting about mid-April through July in 2017. (Thankfully, I was started on pain meds in June).

It feels weird to say that I'm in a good place about it now because it has been such a long road. Recovery was hard for several months. Treatment and medications were difficult as well. I actually lost a lot of hair for the first three months because the chemo treatment was really hard on my body. It finally started growing back around October, so that's been fun. I have had two haircuts since then and each time I have gotten the same hairdresser. She likes to point out how much it has grown.

I've really been able to come to terms with my Ulcerative Colitis. I accept it as a part of myself, but I am not defining myself by my illness. I like being able to contribute to my support groups and give people advice about going into a colonoscopy or starting Remicaid (the chemo) for the first time. I try not to let my thoughts only pertain to my IBD.

That doesn't mean it still doesn't freak me out sometimes. I've had countless nights where I've cried myself to sleep about it because I could have a flare happen at anytime really. I'm on meds that are supposed to keep me in remission, but UC affects everyone differently. And the meds could stop working at anytime. That's one of the reasons the nurses check up on me so often while I am getting my Remicaid infusions. They have to see if I am developing any new symptoms. Even when I got my February infusion, my veins in my left arm started aching, so I had to get a hot pack tied to my arm.

I was officially in remission since the beginning of last December, but it still affects me. I have to keep taking my immunosuppressants. I have to keep going to my Remicaid infusions once every two months. I have to be mindful of what I eat and what alcohol I drink. I still get worried every time I get period cramps because those aches remind me of my flare. I actual started having another flare a couple of weeks ago. Which has led to me going back to the low residue diet I was on last summer(basically no fruits or veggies).

It's weird because we always knew it was a matter of when than if. It's interesting that it has come around at this time because I've been drafting this post for a couple of months actually, so I had been mulling about what I wish I would have known or if I could go back and tell myself something. "You're going to be okay" seemed too lame and cliche. Any remarks about what I would accomplish within the next year wouldn't have helped me at all. I decided that I wish I would have told myself. " You are stronger than you know."



I try to stay updated on research and articles to try to understand what my body is doing and how my Ulcerative Colitis works. I also read articles about new medicines that are coming onto the market and different research that is looking into the possible causes of IBD (the latest I saw was a chemical that was commonly used in hand sanitizer up until 2016). It is interesting how my worldwide has expanded. I never really knew or heard about chronic illnesses or chronic pain or truly understood autoimmune diseases until last year. It's a whole different subculture of experiences that a surprising amount of people go through everyday.

I'm slowly working on building awareness of Crohn's and Colitis with my friends and family. When I do this, I am not looking for sympathy or to gain attention to myself. I am trying to bring to light issues that most people don't know about or are too ashamed of to have a conversation about it. 

As hard as this past year has been, I really wouldn't change it. I've learned who my true friends are, and I have gotten closer to my family. I have an amazing job and coworkers. I have met a bunch of new people. I gotten closer to Christ and helped lead others closer to him as well. I really can't complain. We all have our own crosses we carry through our lives. Ulcerative Colitis is just one of mine.